Thursday, November 12, 2020
Nicole Agaronnik, Elizabeth Pendo, Tara Lagu, Christene DeJong, Aixa Perez-Caraballo, Lisa Iezzoni (Harvard University), Ensuring the Reproductive Rights of Women with Intellectual Disability, J. Intellectual & Dev’l Disability (2020):
Background: Women with intellectual disability experience disparities in sexual and reproductive health care services. Methods: To explore perceptions of caring for persons with disability, including individuals with intellectual disability, we conducted open-ended individual interviews with 20 practising physicians and three video-based focus group interviews with an additional 22 practising physicians, which reached data saturation. Interviews were transcribed verbatim. We used conventional content analysis methods to analyse transcripts. Result: Physicians indicated that intellectual disability can pose challenges to providing sexual and reproductive health care. Observations coalesced around four themes: (1) communication; (2) routine preventive care; (3) contraception and sterilisation; and (4) conception and parenthood. Observations raised concerns about equity of access to reproductive care for women with intellectual disability. Conclusions: In our sample of physicians, we found attitudes that might compromise reproductive care for women with intellectual disability, suggesting that gaps remain in ensuring reproductive rights of women with intellectual disability.