Saturday, May 19, 2012

Katie Beckett, disability rights advocate, passes away

Via the Family Voices website:

Family Voices would like to extend our deepest sympathy to Julie Beckett and Mark Beckett on the occasion of their daughter Katie Beckett's passing this morning, as well as to Katie's family, friends, colleagues, and loved ones. Julie Beckett is one of the founders of National Family Voices and both Julie and Katie have been dedicated advocates for children with special health care needs for decades.

It was in support of her daughter's in-home medical care that Julie successfully advocated for a waiver of the rules that required children with special health care needs to be in the hospital in order to receive Medicaid funding for acute care. In November of 1981, when Katie was three, President Reagan allowed Katie to go home in time for Christmas and receive her Medicaid-funded treatment at home. At a press conference, Reagan explained the child was being kept in the hospital because of Medicaid rules which forbade paying for her home care, even though the cost to the government would be one-fifth the hospital charges of $10,000 to $12,000 per month.

Read more about Katie and the Katie Beckett waiver.

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