Friday, April 5, 2013
A quite useful article on privacy and secondary uses of information just came across on ssrn: Clark D. Asay, Consumer Information Privacy and the Problem(s) of Third-Party Disclosures, forthcoming in the Northwestern Journal of Technology and Intellectual Property. Asay nicely crystallizes language for two aspects of secondary uses of personally identifiable information. "Incognito" harm is that people may have absolutely no idea of the identities of the myriad entities that may possess information about them. "Downstream" harm is that people may have absolutely no idea or control about subsequent transfers of information. Asay's proposed solution is legislation to introduce a more robust notice and choice regime for personally identifiable information. While his discussion concerns commercial information generally, it is certainly relevant to health information, as such information roams widely in the non-HIPAA world (which includes the wealth of information once HIPAA-protected but then transferred to non-HIPAA covered entities).
Thursday, April 4, 2013
The 15th annual Southern Illinois Healthcare/Southern Illinois University Health Policy Institute, Medical-Legal Partnerships—Collaborating to Transform Health Care for Vulnerable Patients will be held at SIU in Carbondale on May 17, 2013.
Featured Speakers--Morning Session
Ellen Lawton, JD, Lead Research Scientist at George Washington University and responsible for the University's National Center for Medical-Legal Partnership in the Department of Health Policy.
Megan Sandel, MD MPH, Associate Professor of Pediatrics at the Boston University Schools of Medicine and Public Health, the Medical Director of National Center for Medical-Legal Partnership, and a Co-Principal Investigator with Children's Health Watch.
Robert Pettignano, MD, MBA, Associate Professor of Pediatrics at Emory University. He is the Medical Director of Campus Operations and Tri-President of the 1998 Society at Children’s Healthcare of Atlanta at Hughes Spalding.
Emily Benfer, JD, LLM, Clinical Professor of Law and Director of the Health Justice Project, Loyola University Chicago.
Diane Goffinet, JD, Senior Attorney, Land of Lincoln Assistance Foundation and member, Network Advisory Council , National Center for Medical-Legal Partnerships.
Featured Speakers-- Afternoon Session
Joel Teitelbaum, JD,LLM , Associate Professor and Vice Chair for Academic Affairs in the Department of Health Policy at the George Washington University. He also serves as Director of the School's Hirsh Health Law and Policy Program.
Ed Paul, MD, Director, Medical Education, Yuma Regional Medical Center and Clinical Associate Professor, Family & Community Medicine, The University of Arizona College of Medicine.
For more information go to: http://www.law.siu.edu/healthlaw/15hpi.php