Friday, March 12, 2010

Babies’ DNA Stored Indefinitely by the Government without Consent

A recent CNN report raises privacy concerns regarding children’s genetic information.

From CNN:

 …Newborn babies in the United States are routinely screened for a panel of genetic diseases.  Since the testing is mandated by the government, it's often done without the parents' consent, according to Brad Therrell, director of the National Newborn Screening & Genetics Resource Center.

In many states, such as Florida, where Isabel was born, babies' DNA is stored indefinitely, according to the resource center.

Many parents don't realize their baby's DNA is being stored in a government lab, but sometimes when they find out, as the Browns did, they take action. Parents in Texas, and Minnesota have filed lawsuits, and these parents' concerns are sparking a new debate about whether it's appropriate for a baby's genetic blueprint to be in the government's possession.

Read the rest here.

MR

http://lawprofessors.typepad.com/family_law/2010/03/babies-dna-stored-indefinitely-by-the-government-without-consent.html

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