Tuesday, October 22, 2013
On yesterday's ride over the Blue Mountains between my Law School's campus in Carlisle and the campus in State College, I caught a great public radio program, interviewing folks at a "Memory Cafe."
As anyone involved in care for a person with dementia knows, especially those who are "stuck" at home, it can be a challenge. Both the caregiver and the cared-for person could use a good break now and then.
That's where the concept of Memory Cafes come in -- a place where folks won't judge about how Alzheimer's or similar cognitive impairments might affect the ability to have a traditional conversation. Where canes and walkers are welcome. A place that is warm and friendly. Where people understand -- and can share a laugh, along with good coffee.
From Wisconsin Public Radio, here's a bit of history and a description of a cafe in Appleton, Wisconsin:
“'Memory Cafes' got their start in the Netherlands and are common now both there and in England. They are 'judgment-free zones' for people with mild dementia or memory loss.
About a dozen people gathered last week at a cafe session at a coffee shop in Appleton. John McFadden is a co-coordinator of the memory cafe and plays the ukulele to welcome participants. Betty Ann Nelson came with her husband, Duane. The Nelsons have been married 58 years and have attended several cafe sessions since they began earlier this year."
Some sessions might involve activities, such as a program called "Time Slips" where participants pass around amusing photos and are invited to tell the story. One photo showed nuns on bumper cars at an amusement park, leading a customer to describe them as "Holy Rollers."
For more on the concept, follow the links on Wisconsin Public Radio to listen to this radio account.
Tuesday, October 1, 2013
Thursday, September 5, 2013
Over the Labor Day weekend, I happened to catch a great public radio interview with author Will Schwable about the book inspired by his two-year conversation with his mother about books. The End of Your Life Book Club describes how their mutual love of reading provided opportunities for the two to discuss life and death, both directly and indirectly. Why was this important? The conversations took place while his mother was receiving chemotherapy for pancreatic cancer. He said they never had "the big talk" you might expect when confronted with mortality -- rather, they had dozens and dozens of small talks.
It made me think about conversations with my own family members. We live far apart and while I try to make it home frequently (at this point, I'm the only family member who flies), I know I don't make it home often enough. But we talk a lot on the phone and I think we have also developed ways of speaking directly and indirectly about the present and the future. Lately, with my parents that has often been through funny conversations about Dancing with the Stars. (Thank goodness for on-demand television access, since I rarely catch the show on first airing.) We talk about who is "doing well for their age" or who isn't. We suggest who we would like to see on the show (Julie Andrews?), and who makes us cringe (sorry, Cloris Leachman). It has become shorthand for talking about memory, mobility, capacity, and our own aches and pains.
What works for your family? Or are you part of a (rare?) family who talks about such topics directly? (Comments open below)