Friday, July 8, 2011
I am delighted to report that on June 29, 2011 my 13 year old daughter received a cadavar kidney from a 14 year old donor. Linda is doing great! Our hearts go out to that family.
I wanted to mention something here about the power of the internet and blogs. From this blog, I received two inquires from individuals which I did not take seriously because they wanted money. It is a felony to pay for an organ.
But, I also asked Paul Caron, over at Tax Prof Blog to post something on his website and a potential living donor was found. A wonderful young lady who is a LLM take student in Chicago volunteered. The world would be a much better place if there were more people like her.
We also founds several other potential living donors from the Facebook page entitled My Little Sister Needs A Kidney which was written by Linda's 15 year old sister Mollie whom we are very proud of. Additionally, we signed up with Matchingdonors.com which put us in touch with several other potential donors. All told I think we had 8 potential donors, but there were only 3 that we thought might actually go through with this.
We were told that it is generally preferable to have a living donor because the Kidneys generally last longer and they are out of the body for a lesser period of time. We also expected to have to wait for a cadavar kidney and that meant Linda would have to suffer with dialysis.
What happened to us was that Linda was declining fast and was literally one day away from dialysis when this kidney became available. Dialysis is not a cure for kidney disease and it comes with its own side effects which we wanted to avoid. Additionally, because this kidney was from a child we made the decision to go for it and we are glad that we did.
Linda was only on the National Transplant list for only 3 weeks and this was actually the second kidney which was offerred to us. We turned down the first kidney which was offerred because it was from an adult who just got our of prison. His kidney function was also not great-though it was ok. I also understand that HIV tests cannnot detect infections within the last two weeks.
I wanted to thank everyone who supported us through this tough ordeal. While it is not over and there is still a chance of rejection, we are on our road to recovery.
Mitchell H. Rubinstein